Data/Sample Requests
The UCLA ATLAS Community Health Initiative represents a unique, diverse collection of clinical and genomic data from patients across the UCLA Health system. As of May 2024, more than 306,282 patients across UCLA Health have been consented. The overall opt-in rate is 65.3%. Over 113,726 samples have been successfully genotyped and uploaded to the cloud for researchers’ access. Please review Guidelines for Utilizing Universal Consent and Precision Health Data and Samples in Clinical Studies for any potential collaboration with IPH.
Data Request
De-identified Clinical and Genetic Data
Linked clinical and genetic data are made available in the Azure Mednet; a HIPAA-compliant environment in the Azure cloud managed by OHIA designed to host analytically ready de-identified data. Approved users have the capability to integrate de-identified genomic data sourced from consented ATLAS participants with de-identified Electronic Health Record (EHR) phenotypic data available in Azure. Users sign a Data Use Agreement (DUA) before access is granted. To request access, submit a ticket here.
- De-identified UCLA ATLAS Community Health Initiative genotype data
Genetic data are made accessible to investigators by request only. Approved users can access the genetic data through the High Performance Computing (HPC) environment by logging in to the Unified Learning Environment for Analytics & Data (ULEAD). If you would like to review the Clinical Data Dictionary, click here. To request access, submit a ticket here.
Identified Data
The UCLA Clinical and Translational Science Institute (CTSI) handles all requests for identified data. Click here to learn more about the data request approval process and submit your request. Please review Guidelines for Utilizing Universal Consent and Precision Health Data and Samples in Clinical Studies before reaching out to CTSI or UNGC.
Sample Request
Requests for DNA samples from participants in ATLAS will undergo an evaluation process, overseen by the IPH Scientific Review Committee (SRC), comprised of content expert members of the IPH Executive Committee and ad hoc faculty, as needed. Researchers that want to access deidentified DNA samples must submit a Data/Sample Request Form to the IPH. Upon approval, the investigator submitting the request will be contacted by the IPH to initiate the sample request protocol in collaboration with TPCL. TPCL will facilitate the distribution of deidentified DNA samples to the investigator. However, for identified or coded samples, TPCL will only provide samples to investigators who have a valid IRB approved project that specifies the use of ATLAS samples for their research. All researchers are required to submit their IRB approval letter to TPCL for review.
UCLA PI will be charged a nominal fee for processing services. Please contact Dr. Clara Magyar - [email protected] for more details.
Click here to submit a request.